Invitation to Contribute to the ORCCA Research Study
The University of Washington is inviting you to become an official contributor to the Outcomes Registry for Cardiac Conditions in Athletes (ORCCA). The ORCCA study aims to prospectively monitor clinical outcomes in athletes with potentially life‐threatening cardiovascular conditions. The study will assess long‐term cardiovascular outcomes, psychosocial well‐being and sports eligibility decision‐making in competitive athletes aged 18 to <35 years diagnosed with a cardiovascular condition or borderline finding with potential increased risk of major adverse cardiovascular events. Athletes must be participating in a competitive sport at the collegiate, semiprofessional, professional, elite or national level at the time of enrollment or within the last two years. Athletes with a qualifying cardiac diagnosis who return to sport, stop voluntarily or are excluded from sport are eligible. The full ORCCA study protocol was recently published in the Journal of the American Heart Association.
To obtain additional information on study inclusion criteria and to enroll a patient, simply go to our ORCCA study homepage, click the red Register tab in the upper right corner and complete a brief enrollment form. Our study team will contact the patient to obtain formal HIPPA and informed consent. There is a $100 gift to patients who complete enrollment, and a $50 gift to patients who complete the follow-up surveys every six months. Please contact ORCCA project manager, Laurel Thur at lathur@uw.edu with any questions.
Contributors to the ORCCA study who enroll at least one patient will be recognized as a member of the ORCCA Study Group. The ORCCA Study Group will be included on the author's byline in subsequent publications with individual names listed at the end of the manuscript and registered in Medline. We hope you will join us!
Thanks for considering, and we look forward to working with you on the ORCCA study.